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Intellectual outputs

The following intellectual outputs will be developed, iteratively tested, piloted, optimised and exploited into practice:

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IO1: Manual on Palliative Care Competences Framework in Europe

This manual reflects our efforts in collecting and analysing as exhaustive information as possible in the field of palliative and end-life care provision in EU countries and Turkey and more specifically the one concerning vocational education and training of caregivers, social workers, health care professionals, personal assistants and all other relevant professionals, who provide care and services to patients who are suffering from terminal illnesses.
The research was conducted by P6 and P2 with contribution by all other PT Care partners in the period between January and May 2018. The research was done on the territory of eight countries – 5 EU members (Bulgaria, Hungary, Lithuania, Belgium, Cyprus) and one country outside the EU (Turkey). Each partners’ organisation was responsible for collecting and presenting the information relevant for the country of residence. Methods used were:
1. Desk research – gathering and analysing data regarding the existing and provided professional trainings in the field of palliative care on national level
2. Semi structured Interviews with professionals providing services to terminally ill patients, medical professionals and professional trainers and training providers.
The information was collected by specially designed matrix (Annex I), originally created in English and translated in all partners’ languages, and concerns the following domains:
• knowledge
• skills
• competences
• existence curriculum and courses
• costs
• code of conduct
• standard provided by the trainings and the national accreditation
As the majority of the presented training programs are available only on national level and information in English is missing, each responsible partner had to translate the information from its national language to English.
The aim of the matrix was to allow P6 to collect comprehensive information regarding the competences and standards set in the palliative care provision in Albania, Belgium, Bulgaria, Cyprus, Hungary, Lithuania, Romania, Turkey and UK, as well as such concerning all types of trainings and training process on the topic provided by relevant institutions and organisations operating in those countries.
This document is an analysis of the data and a comparative summary about Palliative Care Competencies Frameworks applied in the EU and associated countries for the PT Care Project (Activity code O1-A3) which generally aims to develop a Manual on Palliative Care Competences Framework in Europe. This analysis seeks to connect VET education structures in Europe, to identify what the EU countries and Turkey have been providing and have in common so far about Palliative Care and also to exchange existing information.
The focus of the analysis is on the explanation of similarities, while the differences will be just perfunctory examined. As the analysis is aimed at providing qualitative information which to ease the process of guidelines creation and manual development, we find this conventional type of analysis as more useful as it will allow us to focus on the data driven from good and applicable practices which shows similarities and thus to ensure that we have indicated and displayed those element of Palliative Care (PC) training programs which are commonly recognised as important, relevant and could be considered as mandatory for each PC training programme of good quality.

IO2: PTCare competences assessment tool

The PTCARE Assessment Tool is developed to assist individuals to build on the skills they already have, shaping professional practice in accordance with the Palliative Care Competences Framework in Europe developed under IO1 Manual on Palliative Care Competences Framework in Europe. The tool is developed as a mean of assisting caregivers and their managers in identifying development needs to ensure that high quality care is provided to patients, families and carers receiving palliative and end-life care. The competencies within the tool can be interpreted and applied across the range of sectors, settings and disciplines which provide palliative and end-of-life care. Based on that tool practitioners will use to identify their own development needs, for discussion with their managers and team leaders within a personal development/appraisal process.
The tool has the following five major domains:
1. Overarching Values and Knowledge
2. Communication Skills
3. Assessment and Care Planning
4. Symptom Management, Maintaining Comfort and Wellbeing
5. Advance Care Planning
Each of the domains will have a number of competencies relative to the care and management of patients with palliative and end of life care needs.
The competencies within the tool can be interpreted and applied across the range of sectors, settings and disciplines which provide palliative and end-of-life care.
Each competency have a number of indicators against which to assess competence.
The template used to set out the competency has been developed from previous competency framework development undertaken by IO1 Manual on Palliative Care Competences Framework in Europe.
The level of contact the employee have through his/her job role will determine the level of knowledge and skills you require to deliver palliative and end of life care to patients and their families and careers. For the purposes of this document, three tiers have been identified, which relate to the frequency of contact that you will have with individuals who will require palliative and end-of-life care, and their families.
The competencies have been set out within three areas – knowledge, skills and competences, and within two competency sets. The first set of competencies includes Tier 1 and 2 practitioners and addresses a continuum – from practitioners who will only occasionally meet patients who have palliative and end-of-life care needs and their families to those practitioners who regularly provide such care. The second set of competencies has been designed for specialists whose role focuses on providing care to patients and families requiring care and support in relation to palliative and end-of-life care. You will identify which tier relates to your practice and select the competencies appropriate to your role.

If you are a Tier 1 practitioner, your area of practice is such that you infrequently meet patients and families requiring care and support in relation to palliative and end-of-life care. It is envisaged that you will focus on the competencies related to knowledge and attitudes, to enable you to recognise patients and their families who need such specialised care and direct them to services and practitioners with the necessary expertise.
If you are a Tier 2 practitioner, you provide care on a regular basis to patients and families in relation to palliative and end-of-life care, in addition to caring for other client groups. You are likely to select a wide range of competencies across all areas to enable you to provide high quality care to patients and families requiring care and support in relation to palliative and end of life care. You are not a specialist in the area and may require to access specialised care from the palliative and end of life care team.

As a Tier 3 practitioner, you are a specialist in palliative and end of life care and will be expected to achieve all the competencies in Tiers 1, 2 and 3.

It is also recognised that all staff working in the health and social care sector require a level of awareness of the needs of clients and patients receiving palliative and end of life care. This will enable them to communicate with care and sensitivity. It is expected that this is managed through corporate and departmental induction programmes.

IO3: PTCare learning resources repository for further VET training of palliative and end-life caregivers

This output is serving as a lifelong learning materials for further qualification of the palliative and end-life caregivers. It is hosted by the learning portal (IO5) and enables also the VET learners (palliative and end-life caregivers) to contribute with their own materials and practices – on written format, case studies based or as video testimonials.
The learning resources repository is structured by learning objects/resources including metadata descriptions in the following eight (8) domains:
Domain 1: Structure and processes of palliative and end-life care
Domain 2: Physical aspects of palliative and end-life care
Domain 3: Psychological and Psychiatric aspects of palliative and end-life care
Domain 4: Social aspects of palliative and end-life care
Domain 5: Spiritual, religious and existential aspects of palliative and end-life care
Domain 6: Cultural aspects of palliative and end-life care
Domain 7: Care of the patient at the end-life conditions
Domain 8: Ethical and legal aspects of palliative and end-life care

IO4: PTCare service awareness video on palliative care provision

This video is dedicated to raise the awareness about the importance and benefits of good palliative and how the end of life care helps to share the understanding that has been brought about by the experience of this essential package of care. The PTCare video is describing the needs and the services needed in palliative care targeting to support the awareness in the society towards the importance of the provision and subsidizing such services. The video is highlighting the cultural, ethical and social dimensions in the participating countries and is promoting the social awareness about the palliative and total care vocation. The spot will be available in all languages in the second project year.

IO5: PTCare interactive learning portal

An Interactive learning portal has been created. It facilitates the instructional design of the learning resources produced under the scope of this project.
The portal features includes:
– registration/monitoring function,
– space to accommodate online debates and forums
– learning resources repository
– secure virtual classroom environment
– database link to occupational profiles among partners countries
– self-assessment plugin.

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